Oh Kuba - my heart goes out to you and your family. What a day that must have been from the "high of highs" to the "low of lows". Her heart surgery must have been terrifying. It's a miracle that they can even operate on a baby that small.

You seem to be dealing with this in the only way you can - one step at a time. I hope your daughter can grow up and become somewhat independent. There are gradations of DS. I grew up next to a girl who was the eldest of 5 kids with DS and she was always a member of group that played together. She was also able to go to a special school. She was accepted by us because we didn't know any different - that was just how Teresa was.

And last but not least - my son is dating a wonderful Polish women who will probably become a member of my family. She is wonderful and I am very fond of her. She is a wonderful representative of your country.